I had a conversation with a friend while we were walking a few weeks ago. We talked about a lot of things, including why I was avoiding sitting down to write the book I've had on my heart for the past 3 1/2 years:
Me: It's just really hard and painful and emotionally draining. I just don't want to go back to the horror of 4 years ago.
Friend: If I were to read a book like yours I would want the writer to REFLECT on, not relive, what she went through.
You guys! REFLECT! It has had such a profound effect on how I have grieved Aaron this year. I typically refer to the 2 weeks from December 27th until January 9th as my "dark weeks." The flashbacks of the last weeks of Aaron's life as he died of cancer. Random crying fits. Frustration and anger. Depression. Dark.
Tomorrow, January 9, 2017, will be Aaron's 4th Heaven Day. My grief process has been incredibly different this year. Sure, I've had my dark moments but not weeks or even days; Moments. I realized that Aaron isn't more honored, remembered, or loved if I fix my mind on every little detail of 4 years ago. Yes, this was the day the only thing he could say was my name in a strained whisper. Yes, this was the day he became so weak he could no longer move his head. Yes, this is the day our family sat in my son's room as the fabulous hospice nurses put in a catheter (the one thing he was terrified of). All those things, and more, happened 4 years ago.
HOWEVER, that is not today. I don't have to relive those days. I already lived them firsthand the first time around. I can reflect on them: what I learned, the sweet moments where my priorities and purpose were crystal clear, the blessings (yes, you read that right) in the moments among the tragedy.
Does it mean it doesn't hurt? Does it mean that I don't miss Aaron? Does it mean I'm glad he isn't here? Absolutely NOT! It hurts and I miss him and I wish we never had to go through what we went through...but we did. It all happened and no number of tears can change that.
REFLECT. It hit me that when I relive, I miss out on what is happening now, here, with my 5 year old Benjamin. There were tears to dry today but they were because he was tired, not because his daddy lives in Heaven. And that is ok.
It's ok, ladies and gentlemen. It's ok to not have remembered until 10 pm as I turned out the light on January 7th that it was the last day I heard Aaron's real voice. It's ok for Benjamin to miss me at school and it have nothing to do with Aaron. It's ok to be moving forward, doing well, feeling joyful. It's ok.
It's more than ok. When I live a vibrant life, it honors Aaron's memory: a man full of fun and joy and life. When I thrive in my new normal, it honors God: my Creator Who continues to give me life, has carried me through the darkest moments, and has more for my son and me than I can even imagine.
Yes, the scar still hurts, but not all the time. And that's ok.
Sunday, January 8, 2017
Thursday, October 27, 2016
Reasons
I used to be the woman who tried to come up with the reasons to why God allowed something to happen.
"This happened so that..." "Well, it seems that this is why this happened..."
How prideful! How foolish! How small my God seems to be!
After Aaron's death, I found comfort in identifying and naming unique blessings as reasons why I didn't have to let it hurt so bad. Spiritual and emotional growth that happened to explain away the confusion of the death of the man I thought would share my life and partner in raising our children.
Reasons make it better, right? When things make sense they don't hurt so bad, right?
Beloved, God is God. God is supernatural. God sees the end before you even get to the beginning. God is the Creator. He is imaginative and truthful and loving and just and pure. I think God can also be confusing. Yup, confusing and I am grateful.
I don't want a small god. I do not worship a small god. My God is the God who spoke all things into to existence and order and life. My God is the God who raised men from the dead and yet died for me. My God is the God who causes life to come from death.
How silly to think I could explain something so intricate and delicate and supernatural as the witness, whole-hearted love, and death of a 30 year old man who lived his life completely devoted to his First Love!
Maybe we had to endure this pain so that my late husband's life would lead many to Christ. Maybe I have endured this tragedy to be able to meet others in their tragic pain. Maybe my Ben has to endure this hardship to refine and tenderize his heart to his Heavenly Father.
I don't know why my powerful and loving God allowed Aaron to suffer through cancer and die. When Ben asks, I tell him the best I know: God has a purpose for each soul on this earth. Once our purpose is accomplished, we are released from this world and called Home to be with Him. "Daddy was done with the work God had for him so Jesus called him Home to Heaven. We are still here so there is more for us to do! There is still more that God is going to do in and through us!"
Knowing the "why" won't fill the hole in our hearts or our lives. Knowing the Who will bring healing. My God brings life out of death and He is faithful.
"This happened so that..." "Well, it seems that this is why this happened..."
How prideful! How foolish! How small my God seems to be!
After Aaron's death, I found comfort in identifying and naming unique blessings as reasons why I didn't have to let it hurt so bad. Spiritual and emotional growth that happened to explain away the confusion of the death of the man I thought would share my life and partner in raising our children.
Reasons make it better, right? When things make sense they don't hurt so bad, right?
Beloved, God is God. God is supernatural. God sees the end before you even get to the beginning. God is the Creator. He is imaginative and truthful and loving and just and pure. I think God can also be confusing. Yup, confusing and I am grateful.
I don't want a small god. I do not worship a small god. My God is the God who spoke all things into to existence and order and life. My God is the God who raised men from the dead and yet died for me. My God is the God who causes life to come from death.
How silly to think I could explain something so intricate and delicate and supernatural as the witness, whole-hearted love, and death of a 30 year old man who lived his life completely devoted to his First Love!
Maybe we had to endure this pain so that my late husband's life would lead many to Christ. Maybe I have endured this tragedy to be able to meet others in their tragic pain. Maybe my Ben has to endure this hardship to refine and tenderize his heart to his Heavenly Father.
| My Daddy and me both at 4 years old |
I don't know why my powerful and loving God allowed Aaron to suffer through cancer and die. When Ben asks, I tell him the best I know: God has a purpose for each soul on this earth. Once our purpose is accomplished, we are released from this world and called Home to be with Him. "Daddy was done with the work God had for him so Jesus called him Home to Heaven. We are still here so there is more for us to do! There is still more that God is going to do in and through us!"
Knowing the "why" won't fill the hole in our hearts or our lives. Knowing the Who will bring healing. My God brings life out of death and He is faithful.
Sunday, September 4, 2016
"You have no idea..."
"You think you are tired now, you have no idea."
"You think you are short on time now, you have no idea."
"You have no idea how this little one will change your life."
"You think you give and receive love, just wait until this little one is born. You have no idea."
You guys. I had no idea! I had no idea how exhausted and energized and bored and creative and flabbergasted and speechless and awed and empty and full motherhood would be. I had no idea how long the days (and nights) would be and how quick the years would pass. I had no idea your heart could expand to completely fill your entire body to the brink of bursting from a smile. I thought I knew. I had read the books and talked with the parent friends. I heard it so many times: You have no idea.
I had no idea.
I'm feeling a little like that almost-to-delivery-day 26 year old pregnant woman/new mom again. I am standing on the edge of a new life, wondering what the reality will really be like. I've done my best to prepare but there is just no way to fully prepare.
On Tuesday, my one and only, the little one who cried because his favorite teddy needed to go in the wash, this little light of my life, my boy who has to be sung his lullaby to at bed time, this little 5-going-on-50 boy will leave my house, get in a vehicle with a bunch of other people's tiny humans, and go to school. I will no longer be the person who spends the most daylight hours with him. I will hear stories of what he did without me. I will have to let go a little more. And it is good and it is hard.
And as he sleeps, snuggling his entourage of stuffies (Corduroy Bear, Ben Bunny, Daddy Bunny, the one armed Christmas Monkey, and Blankie), I just remind myself that I have no idea. I have no idea how this next chapter will look. I have no idea how much our lives and the rhythm of it will change. I have no idea what the Lord will do in us through school. I have no idea what the Lord will do through us in those we meet. I have no idea how much he will learn and grow. And I have no idea how much I will learn and grow.
What I do know is this: my little man is ready, I am anxiously excited, and God is going to do amazing things through my boy. The world needs my sweet Ben: his laughter, his tender-heart, and his compassion.
Kindergarten, you think you are ready for Ben. You have no idea.
"You think you are short on time now, you have no idea."
"You have no idea how this little one will change your life."
"You think you give and receive love, just wait until this little one is born. You have no idea."
You guys. I had no idea! I had no idea how exhausted and energized and bored and creative and flabbergasted and speechless and awed and empty and full motherhood would be. I had no idea how long the days (and nights) would be and how quick the years would pass. I had no idea your heart could expand to completely fill your entire body to the brink of bursting from a smile. I thought I knew. I had read the books and talked with the parent friends. I heard it so many times: You have no idea.
I had no idea.
I'm feeling a little like that almost-to-delivery-day 26 year old pregnant woman/new mom again. I am standing on the edge of a new life, wondering what the reality will really be like. I've done my best to prepare but there is just no way to fully prepare.
On Tuesday, my one and only, the little one who cried because his favorite teddy needed to go in the wash, this little light of my life, my boy who has to be sung his lullaby to at bed time, this little 5-going-on-50 boy will leave my house, get in a vehicle with a bunch of other people's tiny humans, and go to school. I will no longer be the person who spends the most daylight hours with him. I will hear stories of what he did without me. I will have to let go a little more. And it is good and it is hard.
And as he sleeps, snuggling his entourage of stuffies (Corduroy Bear, Ben Bunny, Daddy Bunny, the one armed Christmas Monkey, and Blankie), I just remind myself that I have no idea. I have no idea how this next chapter will look. I have no idea how much our lives and the rhythm of it will change. I have no idea what the Lord will do in us through school. I have no idea what the Lord will do through us in those we meet. I have no idea how much he will learn and grow. And I have no idea how much I will learn and grow.
What I do know is this: my little man is ready, I am anxiously excited, and God is going to do amazing things through my boy. The world needs my sweet Ben: his laughter, his tender-heart, and his compassion.
Kindergarten, you think you are ready for Ben. You have no idea.
Wednesday, November 4, 2015
November race benefiting the Howell family!!
Saturday is the last race of the 2015 race series! I can't believe how quickly this year has flown by!! Thanks to my sweet boy, Ben, for encouraging me to get this together.
In 2013, Mark and Christina Howell, along with their son Gabriel, was the first family I ran and fundraising for and it seems appropriate that they are the last family of this series. When I ran for this sweet family I was connected to Christina through a mutual friend and we had spoken to Christina once. Over the past two and a half years our friendship has grown and I am so blessed by this family! It is my pleasure to be able to run for Mark and Christina, this time as a true friend!
Mark was diagnosed with stage 4 melanoma in the fall of 2012 and you can read the first post from his wife HERE. He is a light to be around. He continues to lean into God for strength and lives with such joy and vibrancy you can't help but love to be around him! He has graciously taken the time to write an update on how he has been doing through his cancer journey.
"It has been awhile since my last update, but overall I am doing well and continue to wage war on the cancer battle! Over the past 18 months I have been on a drug called PD-1, which has shown great success in the Melanoma world. My health has been no exception! The drug had shrunk a large tumor in my neck that become troublesome to my windpipe, and it was able shrink it mall enough o safely remove it from my neck altogether! No recurrences in or around that area to date which is great news. I have one final traceable tumor in my abdomen, near the original surgical site. We have been tracking this tumor for about 6 months and it has stayed about the same size, and happens to be in a tricky spot to remove. I've had numerous scans performed and meet with the surgeon to identify the risk/reward potential of surgery, and to best identify what the plan should be going forward.
So, how can you help the Howell family?
1. Run/Walk/Cheer: I'll be running the Outrun Hunger 5K in Commerce Township on Saturday, November 7th! You can register HERE and at the race. Come on out to meet the Howell family, run, walk, and/or cheer on the other runners.
2. Donate: As Mark mentioned, there are a ton of expenses that come along with cancer. The Howells have endured 3 years of these expenses including trips to Tampa, FL at least once a month for Mark to receive treatment. Thank you so much for any donation to this family! You can make your donations one of two ways:
A. Send a check made to Mark Howell or The Mark Howell Foundation, which can be mailed to Cooper & Binkley Jewelers, 105 W. Main Street, Brighton, MI 48116
In 2013, Mark and Christina Howell, along with their son Gabriel, was the first family I ran and fundraising for and it seems appropriate that they are the last family of this series. When I ran for this sweet family I was connected to Christina through a mutual friend and we had spoken to Christina once. Over the past two and a half years our friendship has grown and I am so blessed by this family! It is my pleasure to be able to run for Mark and Christina, this time as a true friend!
| May 2013 with the Howell family |
"It has been awhile since my last update, but overall I am doing well and continue to wage war on the cancer battle! Over the past 18 months I have been on a drug called PD-1, which has shown great success in the Melanoma world. My health has been no exception! The drug had shrunk a large tumor in my neck that become troublesome to my windpipe, and it was able shrink it mall enough o safely remove it from my neck altogether! No recurrences in or around that area to date which is great news. I have one final traceable tumor in my abdomen, near the original surgical site. We have been tracking this tumor for about 6 months and it has stayed about the same size, and happens to be in a tricky spot to remove. I've had numerous scans performed and meet with the surgeon to identify the risk/reward potential of surgery, and to best identify what the plan should be going forward.
This next decision is a delicate one, as any potential choice has its potential pros and cons for my short and long term health potential. My family and I continue to be faithful in God that He will guide us down the appropriate path. Medical expenses continue to be a burden and impact our day to day lives, although we make the best of everything we can. We have restructured our lives so that we are able to still do fun family things occasionally, as good “experiences” and memories have become our focus over tangible items, but the weight of expenses from diet restrictions, vitamins, medications, treatments, scans, and traveling to various facilities around the USA do continue to weigh on us. We are eternally grateful for all who have helped in the form of thoughts, prayers, donations, and gifts of all kind throughout our battle and are truly humbled by the generosity shown by thousands over the past few years of our battle. The day to day fight is made easier by all your support, and we will forever be grateful for your love and generosity.
-The Howell family (Mark, Christina, and Gabriel)"
Mark and Christina have refused to forfeit their lives to cancer and all the areas it touches. They continue to be a witness of what it looks like to live in faith, even when you don't understand and the road is rough. They live in the belief that God has them safely and lovingly in His hands, which is the best place to be.
Mark and Christina have refused to forfeit their lives to cancer and all the areas it touches. They continue to be a witness of what it looks like to live in faith, even when you don't understand and the road is rough. They live in the belief that God has them safely and lovingly in His hands, which is the best place to be.
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| Mark ran the Warrior Dash this summer!!! |
So, how can you help the Howell family?
1. Run/Walk/Cheer: I'll be running the Outrun Hunger 5K in Commerce Township on Saturday, November 7th! You can register HERE and at the race. Come on out to meet the Howell family, run, walk, and/or cheer on the other runners.
2. Donate: As Mark mentioned, there are a ton of expenses that come along with cancer. The Howells have endured 3 years of these expenses including trips to Tampa, FL at least once a month for Mark to receive treatment. Thank you so much for any donation to this family! You can make your donations one of two ways:
A. Send a check made to Mark Howell or The Mark Howell Foundation, which can be mailed to Cooper & Binkley Jewelers, 105 W. Main Street, Brighton, MI 48116
B. Go to their fundraising page by clicking on this LINK
3. Spread the word: Please send this information to your friends, share it on your social media sites, talk about Mark and Christina with your friends. Friends, cancer doesn't care what age you are, whether or not you are married, if you are a parent. Let's not ignore this disease and its effects on those we care about.
4. Pray!
* Praise that Mark's treatments have been effective in controlling his cancer growth!!!!!!!!!!
* Prayer that the treatments will continue to be effective
* Praise for every day this sweet family gets to spend together
* Prayer for God to continue to bless them with family experiences and building memories for decades!
* Praise for Mark and Christina's desire to be a witness for Christ
* Prayer for continued advancements in melanoma research and treatments
* Praise for those in the medical field who serve families with cancer
* Prayer for the runners, walkers, and volunteers of the race
Thank you so much for your prayers, support, and donations to this family!
3. Spread the word: Please send this information to your friends, share it on your social media sites, talk about Mark and Christina with your friends. Friends, cancer doesn't care what age you are, whether or not you are married, if you are a parent. Let's not ignore this disease and its effects on those we care about.
4. Pray!
* Praise that Mark's treatments have been effective in controlling his cancer growth!!!!!!!!!!
* Prayer that the treatments will continue to be effective
* Praise for every day this sweet family gets to spend together
* Prayer for God to continue to bless them with family experiences and building memories for decades!
* Praise for Mark and Christina's desire to be a witness for Christ
* Prayer for continued advancements in melanoma research and treatments
* Praise for those in the medical field who serve families with cancer
* Prayer for the runners, walkers, and volunteers of the race
Thank you so much for your prayers, support, and donations to this family!
Tuesday, October 13, 2015
October race: Detroit half marathon with Hope Water Project
Only 2 more races in my 2015 race series! That went really really really fast!
On Sunday I will run to Canada and back (it's a perk of living in southeast Michigan) in the International Detroit half-marathon with the Hope Water Project. Why did I choose this race and this team?
1. Ben made me. Haha! When Ben told me there were people who needed me to run for them, one of the first people he said were "people in Africa who don't have clean water or Jesus." That little boy inspires me constantly. Last year I ran the relay with my family, which was my parents first running race, and will be running the international half this year!
2. To bring clean water and Jesus to the Pokot tribe of Kenya, Africa. Through wells, Hope Water Project is able to bring clean water and health to the Pokot tribe in Africa. Can you imagine handing your child a bottle full of grey water that was collected just down river from a herd of cattle? Me neither.
Once the wells are built, Hope Water Project continues to bring water, Living Water. They build a community around the well and share the gospel. They are the hands and feet of Jesus to these people!
3. In July I began training with the Hope Water Project team from a local church call Venture Church. I didn't know a single person and was soooooo nervous on my way to my first group run. God had gone before me and prepared a wonderful woman to run that entire 7 mile run by my side in conversation. After we finished our run, she introduced me to as many fellow runners as she could. Since that first run, they have become my tribe, my people, my community. Ben and I have been wholly welcomed and ministered to in their church. There is no pity in their friendship but purely love and encouragement and accountability. In three months and more miles than I can count, they have gracefully folded my atypical family into theirs without hesitation. I now realize that God wasn't using this training and race just to fill a need for the Pokot people. He was using it to fill a need in me, to water my spirit.
Whoever brings blessing will be enriched, and one who waters will himself be watered. - Proverbs 11:25
God calls us to serve. When we answer His call, we not only fill others, but we are filled also. He is so creative and purposeful. I often underestimate Him.
So, how can you help?
1. Come cheer us on: We will be in Detroit and Windsor on Sunday, October 18th. Come on down and cheer us on!!
2. Donate: We cannot build wells without your financial support. You can donate by clicking this LINK to go to my fundraising page. Thank you!
3. Spread the word: Go ahead! Be that person! Share this post on your social media, through e-mail, go old school and talk with someone about what Hope Water Project is doing! It doesn't matter how, just tell people!
4. Pray:
* Pray for the Pokot people as their lives are changed by clean water and Jesus
* Praise for those who have said "yes" to God's call to minister to His people
* Pray for the man power to build the wells!
* Praise that Hope Water Project raised enough to build more wells than they had workers to build (see prayer above!)!
* Pray for God to continue to direct and lead each runner as to where we are to serve next
* Praise for able bodies to run for Him!
* Pray for safety and health for all the runners, volunteers, and spectators.
| Start line 2014 |
1. Ben made me. Haha! When Ben told me there were people who needed me to run for them, one of the first people he said were "people in Africa who don't have clean water or Jesus." That little boy inspires me constantly. Last year I ran the relay with my family, which was my parents first running race, and will be running the international half this year!
| My mom and me before her first run EVER! |
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| That is water, not chocolate milk. Water. |
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| Girls walk an average of 3.7 miles to get dirty water to bring back to their families. |
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| Team Venture! |
Whoever brings blessing will be enriched, and one who waters will himself be watered. - Proverbs 11:25
God calls us to serve. When we answer His call, we not only fill others, but we are filled also. He is so creative and purposeful. I often underestimate Him.
So, how can you help?
1. Come cheer us on: We will be in Detroit and Windsor on Sunday, October 18th. Come on down and cheer us on!!
2. Donate: We cannot build wells without your financial support. You can donate by clicking this LINK to go to my fundraising page. Thank you!
3. Spread the word: Go ahead! Be that person! Share this post on your social media, through e-mail, go old school and talk with someone about what Hope Water Project is doing! It doesn't matter how, just tell people!
4. Pray:
* Pray for the Pokot people as their lives are changed by clean water and Jesus
* Praise for those who have said "yes" to God's call to minister to His people
* Pray for the man power to build the wells!
* Praise that Hope Water Project raised enough to build more wells than they had workers to build (see prayer above!)!
* Pray for God to continue to direct and lead each runner as to where we are to serve next
* Praise for able bodies to run for Him!
* Pray for safety and health for all the runners, volunteers, and spectators.
Tuesday, September 22, 2015
That time Ben brought me to my knees with a bedtime story
Ben has a book called "Daddy and Me." I made this book as a gift from Ben to Aaron for his last Christmas on Earth. Aaron was really struggling with how little time God had allowed for him to have in Ben's life and wondered if he had really made any impact on our sweet boy. If only he could see him now!
We've read "Daddy and Me" lots of times with lots of story telling and laughter over all the silly and sweet things Daddy and Ben did together and it warms my heart to see Ben's eyes light up. Daddy hugged him, cuddled him, bathed him, walked with him, played with him, all in pictures for proof. It is one of Ben's favorite books.
Tonight, Ben chose this book as his bedtime story but it was different this time. About half-way through my tenderhearted, thoughtful son looked at me with tears in his eyes. "Mamma, it's so sad that I only had a daddy when I was a little baby. I really miss my daddy. I wish he could see me now. Do you think he knows how old I am?" What do you say to that? How can I take the hurt away and make it better? I can't kiss the boo-boo left on his heart.
We cried. We talked about how it is ok to miss Daddy. We talked about what we would do or say if we could talk to Daddy. Then we kept reading the book. As I closed the book Ben did what he usually does without realizing it, he pointed me straight to the Cross. "Mamma, did Daddy teach me how to love the Lord?" Oh sweet boy, with every breath your daddy breathed, even to the very last breath, that was his prayer and desire.
I sang Ben the lullaby I've sung to him since he was an infant, kissed his forehead, turned out the light, and closed the door. Half-way down the hall I dropped to my knees in tears. Pleading, questions, and praise fill my heart. Jesus, I can't do this. You are going to have to carry me. Jesus, in Your power, equip me and strengthen me in my weakness. God, why did You allow him to suffer and die so young? Why does my baby have to endure this? Why does he need to learn the delicate balance of moving forward without leaving his dad behind? Why have you asked us to be a family of 2 for so long? How do I guide Ben through this to see that there is joy in sorrow? Help us to have peace where you have called us. Lord, thank you that my boy lives in the light of the Cross. Holy Spirit, thank you for filling him and being known to him. God, thank You for being his Father Who is with him for all eternity. Thank You, Jesus, that You hold us in Your hand and lead us in our new normal.
Jeremiah 29:11 - "For I know the plans I have for you, declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
| Ben and Aaron at 4 yr. |
Tonight, Ben chose this book as his bedtime story but it was different this time. About half-way through my tenderhearted, thoughtful son looked at me with tears in his eyes. "Mamma, it's so sad that I only had a daddy when I was a little baby. I really miss my daddy. I wish he could see me now. Do you think he knows how old I am?" What do you say to that? How can I take the hurt away and make it better? I can't kiss the boo-boo left on his heart.
| Love |
| Snuggles |
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| Family pictures 2015 |
Tuesday, September 15, 2015
How can I donate to Super Sam in honor of Diane?
The race on Saturday went great! Ben got his donuts and I got to run for one of the most amazing women I know!
For those of you who read Diane's story, how amazing is it that she is pouring out love on Super Sam and his family!?
I spoke with Sam's mom, Leslie, and she couldn't believe that Diane wanted to bless their family in this way. Sam is doing well! His scans have been clear and he is making progress with his physical struggles. He even started kindergarten this year and is going to be a big brother again!!!
Roger and Leslie are so grateful for your donations and to Diane for her out pour of love!
As you saw in my post prior to the race, I wasn't sure how to get donations to Super Sam. His daddy fixed that real quick! There is a link to Super Sam's PayPal account on Super Sam's facebook page. You can click on the link to make your donation. If you are uncomfortable with using PayPal or making an online donation, please contact me by e-mail, text, or leaving a comment on this post and I'll instruct you on how to send a check to the family.
Thank you again for your generosity and prayers for this little man and his family over the past 2 years!
| Montour Trail tradition |
| LOVE HER! |
Roger and Leslie are so grateful for your donations and to Diane for her out pour of love!
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| If you have followed Super Sam, you'll understand why him riding a bike brings me to tears! |
Thank you again for your generosity and prayers for this little man and his family over the past 2 years!
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| What a handsome superhero! |
Wednesday, September 9, 2015
Diane's story
It's almost race day again!!! The Montour Trail half-marathon is so special to me. Not only does it give me reason to head back to dah 'Burgh to see a ton of wonderful people, but it was the very first half-marathon I even ran. Aaron encouraged me to run this race to help reduce my stress and give me something other than cancer and a toddler to focus on. Paul and Diane Deffenbaugh joined Aaron and Ben to cheer me on. At mile 4, I passed them while they sat in the back of the Deffenbaugh/s van cheering with mouthfuls of powdered donuts!
This year, I have the absolute privilege of running for my "Pittsburgh Mom." Paul and Diane, along with their kids Sam and Danielle, never hesitated to take us in as family. Ben had sleep overs at their house each time we went in for surgery. Diane was always there to care for Ben so I could take Aaron to appointments, treatments, or the ER. It got to the point where Ben would cry if I opened the door in the morning and Diane was not there! The Deffenbaughs have been our prayer warriors and the hands and feet of God as Ben and I have journeyed through life with and without Aaron.
And then the heartbreaking happened. Diane called me a year ago to let me know that she had been diagnosed with cancer...pancreatic cancer. How is it that the woman who gave so much time and energy to love our family through cancer now had to endure her own journey!? However, her faith has shined through from the beginning. She sought God and asked "Lord, how are You going to use me through this? Who is it You have placed in my path? Help me to see them. Help me to praise You in the storm!" She has one of the kindest, God-seeking, giving souls I know. She is a light in the dark! Here is her story:
"Journey of Faith
| Pittsburgh Parents (Paul and Diane) |
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| Diane and Ben on his first trip to the cabin |
"Journey of Faith
My name is Diane Deffenbaugh.
I am 56 years old, married for 27 years to Paul and we have two
children, Danielle and Sam. Danielle is
married to Isaac and Sam is a senior at WVU.
I went into the hospital in September of 2014 to simply have a stint put in to open up my bile duct, so we thought. A scan revealed a mass. While they put the stint in through an endoscopic procedure, they biopsied a 2 centimeter mass. It came back as malignantpancreatic cancer. The scraping from the biopsy caused a 5 day stay in the hospital with pancreatitis. They could not remove the cancer until November when the pancreatitis was over.
In November I had a Whipple surgical procedure whereby they
removed part of my pancreas, part of my stomach and a little of my
duodenum. I was in the hospital for 10
days, and I came home just before Thanksgiving.
I was able to enjoy the holidays before I started
Chemotherapy in January. Chemo lasted
until June. I had 3 weeks of chemo and
then was off one week. I had 18
treatments in all.
| Rockin' the purple at the Pittsburgh Pancreatic walk/run |
It is now September, one year after our whirlwind
started. God has been our Rock through
it all. There are several scriptures
that have sustained me through this journey.
Psalm 139: 13-16 “For
You created my inmost being, you knit me together in my mother's womb. I praise you because I am fearfully and
wonderfully made. All the days ordained
for me were written in Your book before one of them came to be. God is sovereign over all things.”
Deuteronomy 31:8 “The Lord Himself goes before you and will
be with you. He will never leave you nor
forsake you. Do not be afraid, do not be
discouraged.” (He doesn't send a
messenger. He sends Himself to our aid.
Emmanuel. We are so thankful for
such a personal God.)
Psalm 112:7 “They will have no fear of bad news; their hearts are steadfast, trusting in the
Lord.”
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| Danielle and Sam still love playing in the church nursery! |
How can you honor Diane and get involved?
1. Run/Walk/Cheer with us: If you are in Pittsburgh, come on out to run/walk the 5K or half-marathon or you can join Paul, Diane, and Ben with some powdered donuts while they cheer on the runners! Online registration is closed but you can find all the information on the event here.
2. Donate: As I've said, Diane has such a tender heart and love for people, especially children. She has asked that all donations made in her honor be made to Super Sam, the sweet, brave 3 year old boy I ran for in 2013. Praise God he is cancer free now!! I'll have more information on how you can make donations after I spill the surprise to his mom!!! DONATIONS CAN BE MADE THROUGHOUT THE ENTIRE MONTH OF SEPTEMBER, EVEN AFTER THE RACE!
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| Diane can usually be found loving on our kids |
4. Pray:
* Praise that Diane is currently CANCER FREE!!!
* Pray that she remains cancer free and never hears this terrifying diagnosis again.
* Praise that God has organized His children in community to allow us the privilege to pray for and with one another and bear each other's burdens.
* Pray for endurance through continued follow up.
* Praise for the joy and light of Christ that Diane was able to share through this journey.
* Pray for the runners, walkers, volunteers, spectators, and organizers of the race.
Tuesday, July 7, 2015
5th Annual Pittsburgh Cure Sarcoma
Yinz, it's that time again! It's time for the Pittsburgh Cure Sarcoma 5K walk/run! July 11th, 2015 marks the 5th PCS race. I have been honored to have participated in each and every race. Ben has also joined in on the fun each year along with many of our friends and family.
| The beginning of #FacesOfBen and the official race face of the Great Lakers (2011) |
| TEAM AARON (2011) |
| Superhero Dad rocked the race with his sidekick (2012) |
| Keeping our hearts on the joy of the Lord and support of our family and friends (2013) |
| The Great Lakers exploded in size! (2013) |
| Ready to get the 4th annual race started! Surprise! I was asked to speak that year! (2014) |
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| Still working on getting a tough race face out of them at the same time. (2014) |
1. Run/Walk/Cheer with us - You can join us at the Boat House in North Park in Pittsburgh, PA on Saturday, July 11th at 9:00 am. You can register here or at the race. If you have a TEAM AARON or Great Lakers t-shirt from previous years, please pull them out and send me a picture of you in it on Saturday morning!
2. Donate - If you feel lead to donate, please click on the link here and donate to the Great Lakers!
3. Spread the word - Please spread the word about sarcoma. It is still considered a rare cancer. Sadly, I can count at least 5 people outside of the PCS committee who have been diagnosed with sarcoma. Would you please share this event on your Facebook, Twitter, or through e-mail?
4. Pray
* Praise for the support within the sarcoma community for patients, family members, medical care team, and friends
* Pray that God would grant wisdom and creativity to those involved in research to find a cure for many different types of cancer, including sarcoma.
* Praise for treatment options for sarcoma
* Pray for God to comfort those who will be running for the first time without their loved one.
* Praise for this event, which is the largest sarcoma research fundraising event in the nation!
* Pray for the runners, walkers, volunteers, organizers, and all those involved in the race and that it will be a successful event
Labels:
2015 Races,
Aaron,
Benjamin,
PCS 5K,
Purpose,
Running,
The Great Lakers
Tuesday, June 16, 2015
Information for Elliott's race
In all of my emotions reading through Christina's beautiful post and pictures, I neglected to make the information for the race clear. Sorry about that!! So, below is all the info you need about the race THIS SATURDAY in memory of Elliott.
Who: You!
What: DeAndre's Cause Fun Run/Walk
When: THIS Saturday, June 20th
Time: 8 AM
Where: Oakland Community College 0 Orchard Ridge Campus
27055 Orchard Lake Rd
J Building Deck
Farmington Hills, MI
We hope to see you there!
Who: You!
What: DeAndre's Cause Fun Run/Walk
When: THIS Saturday, June 20th
Time: 8 AM
Where: Oakland Community College 0 Orchard Ridge Campus
27055 Orchard Lake Rd
J Building Deck
Farmington Hills, MI
We hope to see you there!
Sunday, June 14, 2015
Elliott and Christina's story
God works in such mysterious ways. Just as I was thinking about talking with God about where He desires me to minister and "are you sure you want me to still focus on widowhood?" a friend of mine posted a heartbreaking fundraising page on Facebook. It was the tragic story of a young newly married man who was beginning hospice due to cancer. It was the beautiful, awe-inspiring story of what God was doing in the life of one young couple who clung to Him and His faithfulness through the most terrifying storm. Elliott Orr was that man. Christina, his young widow, has graciously written their story and provided great pictures so we could get to know Elliott.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
But of course it was high school, and you just can't tell a boy that you like him. You have to get your friends to do it for you. Eventually, my friends told Elliott that I liked him. Elliott couldn't just go off raw emotion to know if he liked me, he had to logically deduce that I could be a girl for him and his logic ended up in my favor. We started dating October 9, 2006. He was a freshman in high school, and I was sophomore. Usually people don't expect your high school sweetheart to be the one, but we made it all through school together. I had so much fun dragging him to dances, going to bonfires, and watching movies with him. I was a year older than him in school, so I attended Michigan State University while he was a senior.
1. Log in into your Paypal account or Sign up for a Paypal account.
2. On the main page in the upper right hand corner, click on the icon "Pay or Send Money."
3. Click on "Send Money to family or friends."
4. The email address for the donations is eorrmissionfund@gmail.com.
3. Spread the Word: Have you told your friends and family about this amazing man? Please share his story of faith, encouragement, and courage.
4. Pray:
* Praise God that our Heavenly Father, in His perfect timing and knowledge, has completely healed Elliott and freed him from cancer and sin!
* Pray for Elliott's family and friends, especially Christina as she grieves the absence of her best friend and husband. This time in the grieving process is especially hard as the numbness wears off and the reality sets in.
* Praise for their faithful witness to God's sustaining comfort and love.
* Pray for the end of cancer. It sucks.
* Praise God for the gift of memory and pictures.
* Pray for all those involved in the race
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Hello all!! This is Christina Orr, and this is my
husband Elliott's story.
It is hard for me to describe all of what Elliott is
and was, but for those of you who did not personally know him, I will try to
give you a glimpse of his character. To me, he is and was my best friend. He
was caring, compassionate, and loving, and I could tell him anything. He would
listen, no matter how much I talked, and he always had very wise counsel. In
our relationship, he was the romantic. He would write me letters and poems and
would always surprise me with gifts. Elliott was a terrific boyfriend and a
even more wonderful husband. To the world, Elliott was very smart. He went to
the Scripps National Spelling Bee three times! He loved learning and remembered
everything he was ever taught. Elliott was so driven in all that he did. He was
valedictorian, he was an all state athlete, and he was just good at everything.
It was annoying at times, but you couldn't stay mad at him for long because he
was so goofy. He would try to make me laugh every time the opportunity
presented itself. I can't tell you how many times he put on a dress, skirt, or
tutu to make me smile.
His best quality was that he loved the Lord and knew
that his mission in life, even though brief, was to glorify Him.
Elliott and I had known each other our whole lives.
We grew up in a small town, we went to the same church, and my dad coached him
in soccer for years. I never really liked him much though. I saw him as a
"know-it-all" who answered every question in Sunday school correctly.
Behind his back, I would refer to him as "smelly-it". As time went on
though, his intellect became more endearing to me and the nerdy boy I once knew
started to look like a cutie. When his braces came off before he went into high
school, I knew my 14 year old heart was in love. He had no idea that I liked him, and he
thought that I was just a nice girl who coincidentally was where ever he
was. He later called me a stalker, but I
would disagree. I was just a girl who knew that she was in love with this cute,
kind of nerdy, and funny boy.
But of course it was high school, and you just can't tell a boy that you like him. You have to get your friends to do it for you. Eventually, my friends told Elliott that I liked him. Elliott couldn't just go off raw emotion to know if he liked me, he had to logically deduce that I could be a girl for him and his logic ended up in my favor. We started dating October 9, 2006. He was a freshman in high school, and I was sophomore. Usually people don't expect your high school sweetheart to be the one, but we made it all through school together. I had so much fun dragging him to dances, going to bonfires, and watching movies with him. I was a year older than him in school, so I attended Michigan State University while he was a senior.
Once he graduated, he followed me to Michigan State.
While in school, we both got hooked up with an on campus ministry and church,
and we loved growing and maturing in the Lord together. The summer after
Elliott's freshman year, we made plans to go on a college missions trip.
Because we were going down to South Carolina for the summer, Elliott went to
the doctor for a routine check-up. He
mentioned to his doctor that his right shoulder had been bothering him, and
just to be safe, the physician made El get his arm x-rayed. What they found
changed the course of both of our lives forever. They found a tumor in his
right humerus (the long arm bone that goes from shoulder to elbow).
On that day, May 16, 2011, Elliott was diagnosed
with Osteosarcoma, a juvenile bone cancer. We were totally shocked. In less
than two weeks, he started a harsh chemotherapy regiment meant to kill any
rapidly dividing cell in Elliott's body. This included cancer cells but also
white blood cells and hair. It also left him with awful mouth sores where he couldn't
swallow, eat, or talk without severe pain. During the duration of his chemotherapy
he lost more than 40 pound. On August 16, 2011, in a 12 hour surgery, Elliott
had his right humerus removed and replaced by a cadaver bone, and he also had
half of a right rib removed. After his surgery, he continued with his awful chemotherapy treatment.
He powered through, with determination and hope that
this cancer would be a struggle that he could overcome. He got done with chemo
on January 11, 2012 and moved into his dorm room at Michigan State that same
night. He came back to college with more purpose and drive because he now knew
what occupation he planned to pursue. He wanted to become an oncologist.
For a year and a half, Elliott was in remission. El built
up his strength and could walk to class without being short of breath. His
mouth sores went away, and he could finally eat solid food. He started playing
soccer again, which he loved. We finally got to go on that college missions trip
and learned a lot about the Lord and his love for us. In December 2012, Elliott
asked me to marry him, and we were planning a wedding for August 31, 2013.
Elliott continued to work hard in school with hopes of getting into medical
school. Life kept moving and cancer seemed like a distant scary memory.
When Elliott had unexplained hip pain, we thought he
had pulled a muscle running or playing soccer. Elliott had a bone scan because
of this pain, and they found multiple tumors in his pelvis, hips, lungs, and
both bilateral heads (the part of the leg bone that fits into the pelvis). On July 10, 2013, Elliott was told that his cancer was
back, and that his cancer could not be cured and could only be kept at bay. Our
oncologist told us that Osteosarcoma would most likely take Elliott's life. Elliott's
family and I were devastated, but Elliott seemed more calm and cool than I have
ever seen him. Everyone cried, and Elliott just held our hands. He said,
"Through any circumstances, all I have ever wanted to do was to bring
glory to God through Christ."
After a few days of non-stop crying, we talked about
getting married sooner than we had planned. We settled on July 18, 2013, my
22nd birthday. We moved back to our home town, Elliott withdrew from Michigan
State, work got started on a little house across from Elliott's parents, and we
planned a wedding in a week. I felt like I did everything in slow motion, so
many people took the reins on planning. I am so grateful that they did. After giving people less than a week's notice,
we said "I do" in front of 400 people on a Thursday at 1 pm. It was
absolutely amazing. We didn't worry about the flowers and the cake like most couples
at weddings, we were just happy to get the opportunity to be married and to
love each other in sickness and in health.
Less than a week after our wedding, we started the
long road of treatment that would never end. A blessing of this second
treatment was that the side effects did not include mouth sores. Most days, when we weren't in the hospital,
life felt pretty normal. Elliott and I traveled to East Lansing to see our
friends who were still students at Michigan State. We could go to church
together, and we spent a lot of time lounging in our new house with our dog,
Nema. Elliott continued this treatment for seven months. We took a break after
this treatment and took a honeymoon to Disney World.
But, the cancer spread again getting larger and
larger everywhere in his body. We started trying other treatments. We tried
another chemotherapy treatment, then an experimental immunotherapy at the
National Institute of Health, and then radiation. Nothing seemed to control the
cancer. In January 2015, the tumors had spread to his spine, and he had become
paralyzed and could not move from the waist down. He told me that this was by
far the worst experience of his whole life because he had become totally
dependent on others to help him. On February 2, Elliott woke up and was not
able to catch his breath, and we found out that he had a blood clot in his
lung. After struggling to get enough oxygen to his body for days, he went to be
with the Lord February 6, 2015 at 23 years old surrounded by his family who loved him.
But Elliott didn't live his life for temporary,
earthly things; he lived for eternal ones. He showed so many people that even
though his body was wasting away, he still had a hope in a God that saved him
from his sins through Jesus. His high spirits and naturally happy demeanor was
not because he knew this cancer was beatable, but because he knew that his real
battle against sin and death had already been won by Christ. He wrote this poem
in 2011.
"People
say with albeit good intentions
That if God heals me then His glory will be shown,
But people often hesitate to mention
The other side of His omniscient throne.
That if God heals me then His glory will be shown,
But people often hesitate to mention
The other side of His omniscient throne.
"For God
to show His power through healing
Would be glorious if it were His will,
But it would also be maybe too appealing
For perhaps my faith would stand too still.
Would be glorious if it were His will,
But it would also be maybe too appealing
For perhaps my faith would stand too still.
"For
in truth I want all to realize in whole
That I care not what this ailment does
Because I truly believe in full
That God knew it all before it was.
That I care not what this ailment does
Because I truly believe in full
That God knew it all before it was.
"And
in trusting Him I would gladly endure
One thousand years of agony and strife
In order to witness the most glorious cure
Of Christ coming into just one more person’s life." - Elliott Orr
One thousand years of agony and strife
In order to witness the most glorious cure
Of Christ coming into just one more person’s life." - Elliott Orr
You can read more about Elliott's life at his blog
caringbridge.org/visit/eorr.
You can also
keep updated on my life at Christinaorr.blogspot.com.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I am in awe of the godliness and maturity this young husband and wife showed in the face of death. They lived out their faith.
If their story has touched your heart, please consider how you can honor Elliott's memory and Christina's journey.
1. Run/Walk/Cheer: Runner or not a runner, please come out to the race! You can run, walk, or cheer. I believe Christina will even be able to join us!!!
2. Donate: Elliott does have a mission and scholarship fund that will be used to help further the Gospel in places where it is not known, and it is also used to further the education of a high school valedictorian and a boys soccer player at North Branch High School. If you would like to donate here is the steps to do so:
You can donate online using a Paypal account. Here
are the steps.If their story has touched your heart, please consider how you can honor Elliott's memory and Christina's journey.
1. Run/Walk/Cheer: Runner or not a runner, please come out to the race! You can run, walk, or cheer. I believe Christina will even be able to join us!!!
2. Donate: Elliott does have a mission and scholarship fund that will be used to help further the Gospel in places where it is not known, and it is also used to further the education of a high school valedictorian and a boys soccer player at North Branch High School. If you would like to donate here is the steps to do so:
1. Log in into your Paypal account or Sign up for a Paypal account.
2. On the main page in the upper right hand corner, click on the icon "Pay or Send Money."
3. Click on "Send Money to family or friends."
4. The email address for the donations is eorrmissionfund@gmail.com.
3. Spread the Word: Have you told your friends and family about this amazing man? Please share his story of faith, encouragement, and courage.
4. Pray:
* Praise God that our Heavenly Father, in His perfect timing and knowledge, has completely healed Elliott and freed him from cancer and sin!
* Pray for Elliott's family and friends, especially Christina as she grieves the absence of her best friend and husband. This time in the grieving process is especially hard as the numbness wears off and the reality sets in.
* Praise for their faithful witness to God's sustaining comfort and love.
* Pray for the end of cancer. It sucks.
* Praise God for the gift of memory and pictures.
* Pray for all those involved in the race
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